Wednesday, July 30, 2014

Helen Okobokekeimei

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People with Disabilities as Social Outcasts: Shifting the Perspective from Victim to Advocate

Posted: 08/12/2013 12:25 pm

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How do people perceive and treat individuals with disabilities? Do they treat them with respect or disparagement? What is it like to experience ridicule, shame, disgrace, isolation, and rejection? While not all people do so, some nondisabled people do not empathize with disabled people and the challenges they face. Some feel uncomfortable being a friend to someone who is perceived differently. People who are not exposed to individuals with disabilities often do not realize that a disabled person, despite his or her disability, is just like a nondisabled person. Everyone should ask themselves, what similarities and differences do I have with people who have disabilities? To what extent do people think individuals with disabilities are different? Nobody should be ostracized for something they have no control over. This is an issue I feel passionate about because I have a learning disability and have been a victim of disability discrimination. I have endured so many obstacles, but I am now an advocate for disability rights. Everyone should treat disabled individuals with respect, dignity, and concern.
In their persuasive article, "Which is My Good Leg?: Cultural Communication of Persons with Disabilities," Charles and Dawn Braithwaite point out that people should not make generalizations about people with disabilities. For instance, they say people should not use terms, such as "handicapped" and "slow," for individuals with disabilities. People should not assume a disability defines a person's identity.
In fact, people with disabilities can do some things that nondisabled people cannot do, bringing their experience and focus to key aspects of a task. Individuals with disabilities are able to bring work ethic skills to complete an assignment or project, allowing them to make a contribution to society. For some people, having a disability helps them learn to advocate for themselves. Some might say that being nice to people with disabilities is not necessarily treating them the same as the general population as everybody else. However, disabled people want their community to know who they are.
This is my story. My parents could not respect and accept me because I was different. They are still in denial that I have a learning disability. I was in special education classes in the Prince George's County Public School System (PGCPS) and these experiences showed me the nature of the world in which I must make a stand. Students judged and ridiculed me for having a learning disability. They called me names and asked me strange questions such as, "Did you fall on your head and become retarded?" The students created rumors about my learning disability and referred to me as someone who did not have common sense, who lacked interaction with her environment, and who was an outcast. When I informed my parents about these situations, they told me, "You like to be called retarded," rather than comforting me. They wanted me to be normal and act like other people. I still do not know what the term "normal" means in this context because I could not be the person my parents demanded.
I was misdiagnosed with several different kinds of disabilities since the day I entered the world and on Friday, July 31, 2009, nearly two months after I had graduated from high school, I was professionally diagnosed with Non-Verbal Learning Disorder (NLD/NVLD). It took a long time because the disorder can be confused with Asperger's syndrome; some of the characteristics overlap.
The disorder does not mean I am not verbal. It means I have problems understanding cues in social settings. Also, it causes me to learn life skills more slowly; these include activities such as driving, socializing, and cooking. It is important to note that people with NVLD want to be around people and desire friends. The challenges associated with socializing motivate me to find programs that can help me overcome the disorder. People who have disabilities must be treated with kindness, openness, and respect. They should be accepted for who they are. They are strong individuals who learn differently and can be role models to others. Simply treat others the way they should be treated. People should take the time to stop ridiculing and being awkward when having a conversation with disabled people. They are not a danger to the public.
Educators, policymakers, and business leaders need to come to a consensus. Everyone needs to send a message to nondisabled people: please help enable disabled individuals to be successful and to have opportunities in life, to pursue their passion, and to be happy. Be wise in interactions with disabled people. I am proud of having a disability. I would not change myself for what society would find more comfortable. The lesson here is to accept people with disabilities for who they are.
 
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Monday, July 14, 2014

Representative image RNA Research & Archives The Rights of Persons with Disabilities Bill was meant to be an enactment to codify India’s obligations under the UN Convention on the Rights of Persons with Disabilities (UNCRPD), which it ratified without reservations. There was a committee set up in 2009 by the Ministry of Social Justice and Empowerment, headed by Sudha Kaul, to draft a bill to this effect. Like the UNCRPD says, the committee included different people with disabilities – across disabilities – to draft this bill.
The draft bill of 2011 was submitted to the ministry, and in response to that or otherwise, the ministry released a draft bill in 2012, both of which are on the ministry’s website. The 2012 draft is not as comprehensive and inclusive as the 2011 one, and there were certain serious issues raised before the ministry on the notification of the 2012 draft.
Thereafter, the draft, apparently still in its 2012 format, went to various cabinet ministries, and then circulated among states. Some version of this bill was cleared by the Cabinet in December 2013.
Following that, organisations of persons with disabilities, confident that the 2012 draft was intact, began protests for the speedy introduction and passage of the bill.  I do not know why they did not believe that there had been changes made, but I assume it was in good faith. These protests were largely led by groups in Delhi who had better access to information. Some pockets of regional groups demanded information on the contents of the bill. They remained unanswered. Meenakshi B of the Disability Rights Alliance, Tamil Nadu, followed up with the ministries and the general passage of the bill, and she was told the bill was “top secret”. Vaishnavi J, one of the founders of The Banyan, also received similar cryptic answers.
On Wednesday, 22 January, Advocate Santosh Kumar Rungta released a copy of the bill along with his comments on how it was unsatisfactory on the point of reservations. This was not an official release. When I read the bill I was shocked at how not only had it completely changed the 2012 draft, it was also oscillating between lip service and absolute violations of the UNCRPD.
Parliament sits on 5 February now, and since we are dealing with people with disabilities here, it is difficult to spread accessible information and raise debate because of their unique needs. Even so, we are trying. Inclusive Planet has prepared an analysis of the bill with respect to India’s obligations under the UNCRPD and NALSAR has released a comparison between the 2012 bill and this bill.
In my opinion, the needs of persons with disabilities are being sacrificed for a quick-fix social legislation on the part of the Congress government to campaign with. There is no question of reference to the standing committee, because there is no time before Parliament is dissolved before elections for the three months the Supreme Court will require to give its report.
Amba Salelkar is a lawyer, who moved into disability law and policy after six years in criminal litigation. She works with the Inclusive Planet Centre for Disability and Policy. She tweets @mumbaicentral.

Wednesday, June 26, 2013

Friday, April 19, 2013

l know that whatever  is portion shall be  giving to me

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